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Prof. Ramaiah Muthyala, CEO & President of IORD, inaugurates the World Rare Disease Day 2025 conference in Vijayawada by lighting the ceremonial lamp in the presence of dignitaries.

World Rare Disease Day 2025: IORD Advocates for Policy & Awareness

By IORD | 0 comment
Vijayawada: The Indian Organization for Rare Diseases (IORD), a non-profit advocacy body, convened a critical conference titled “RAISE THE AWARENESS - RARE DISEASES: Advocate Public Policy, Promote Di
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This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized by the IORD.

Prof Ramaiah Muthyala: A Call for Policy Change and Rare Disease Healthcare in Andhra Pradesh

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This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized
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This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Genomics Programs in Enabling Participatory Medicine for Rare Diseases in India: A Case Study of Autosomal Recessive Congenital Ichthyosis” at the Undiagnosed Disease Network Conference, South Korea (Sept 4–6, 2024).

Undiagnosed Disease Network Conference – Congenital Ichthyosis Case Study from India

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This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Geno
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At the World Rare Disease Day 2025 conference in Vijayawada organised by Indian Organisation for Rare Diseases, Sri M.T. Krishna Babu, IAS, Special Chief Secretary of Health, Medical & Family Welfare, Government of Andhra Pradesh, emphasized the need to strengthen rare disease care in the state.

Strengthening Rare Disease Care in Andhra Pradesh: Sri M.T. Krishna Babu, IAS

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This is a transcribed speech of Sri M.T. Krishna Babu, IAS, Special Chief Secretary, Health Medical & Family Welfare, Govt. of Andhra Pradesh highlighting need for Strengthening Rare Disease Care
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This is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufacturing Drugs for Selected Rare Diseases." He delivered this speech at the World Rare Disease Day 2025 conference, organized by the Indian Organisation for Rare Diseases in Vijayawada, Andhra Pradesh, on February 28, 2025.

Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K Paul

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Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K PaulThis is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufactur
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Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025

Registration is now open for IORD World Rare Disease Day-2025

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Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February,
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The Indian Organization for Rare Diseases (IORD) and the Ram-Janaki Institute Positive Broadcasting House (RJS PBH) have initiated a 20-day awareness campaign to highlight the challenges faced by individuals with rare diseases. The campaign, inaugurated by Professor (Dr.) Ramayya Muthyala, President and CEO of IORD, aims to raise awareness ahead of World Rare Disease Day on February 28, 2025.

IORD-RJS Launches 20-Day Rare Disease Awareness Campaign

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New Delhi: In the run up to the World Rare Disease Day 2025 on 28 February, a 20-day awareness campaign for rare diseases was launched by the Ram-Janki Institute Positive Broadcasting House (RJS PBH),
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A webinar titled on the Urgent Need for a Unified Approach to Tackle Rare Diseases in India is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM.

Join Expert-Led RJS PBH Webinar on Rare Diseases on 9th Feb

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A webinar titled on the "Urgent Need for a Unified Approach to Tackle Rare Diseases in India" is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (
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The following article is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and Challenges’ addressed by Prof. Ramaiah Muthyala at the Federation of Asian Biotech Associations (FABA)-US Chapter.

Prof Ramaiah Muthyala Updates on Rare Diseases in India

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The following is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and
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The Global Burden of Rare Diseases: Issues and Challenges' was addressed by Hyderabad-based Indian Organization for Rare Diseases founder Prof. Ramaiah Muthyala.

Affordability of drugs for rare diseases a challenge

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The following article is reproduced from a news article by Amrita Didyala, published in Times of India on Wednesday, December 18, 2024, based on the webinar ‘The Global Burden of Rare Diseases: Issues
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IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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  • Home
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    • Management Committee
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  • Rare Diseases
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    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
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  • Blog
  • Contact Us
IORD – Indian Organization for Rare Diseases