The 100-day countdown for the World Rare Disease Day-2023 celebration, which falls on February 28, has started with the right earnestness.This year, for creating awareness among the people, short mult
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The United States Federal Drug Administration (FDA) has approved a new gene therapy treatment for a rare blood clotting disease called Hemophilia B. The drug Hemgenix costs US$ 3.5mn (Rs 28.52 Crore).
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Khammam: In a unique initiative to identify and count rare disease populations as part of a pilot study in Telangana, the Indian Organization for Rare Diseases (IORD) has started sensitization and int
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Telangana: In the run-up to the implementation of the ground-breaking proposal to count rare disease patients within Telangana state, the Indian Organization for Rare Diseases (IORD) organised an awar
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(This is an abridged version of the presentation delivered by Dr P. Harihara Murthy, MBBS, MS, DLO, Sr. Consultant E.N. T., Head & Neck Surgeon & Anthroposophic Physician, Swasthya Niketan, Ko
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(This is an abridged version of the presentation delivered by Dr KameshwarRao, Executive Director, National Health Authority at the ‘Dr N Srinivasa RaoMemorial Symposium – Rare Diseases & Alternat
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(This is an abridged version of the presentation titled "Clinical Assessment of European Mistletoe Extracts (Viscum Album) Along with Homeopathy in III and IV Stage Cancers". It was delivered by Dr Ra
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(This is an abridged version of the presentation delivered by Dr I. Rajyalakshmi Homeopathy Practitioner, Hyderabad at the ‘Dr N Srinivasa Rao Memorial Symposium – Rare Diseases & Alternative Trea
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Project Y and the Rare Care Centre at Perth, Australia, Children’s Hospital have partnered with the Indian Organisation for Rare Diseases (IORD) to improve rare disease visibility and recognition on a
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HAEMOPHILIA: An Inherited Condition(This is an abridged version of the presentation delivered by Dr V. Chandrasekhar, MD, FICP, Professor in General Medicine, Kakatiya Medical College & Superinten
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