Being compassionate to the needs of rare disease patients has been a pet concern for late Dr Nyapati Srinivasa Rao, 61, in his long association with the Indian Organisation for Rare Diseases (IORD) as
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If you are a Rare Disease patient in need of a disability certificate, you may no longer need to face the hassle of going around offices as the Department of Empowerment of Persons with Disabilities (
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The Union Health & Family Welfare Ministry has officially approved the “National Policy for Rare Diseases 2021” on 30th March 2021.This development comes in the wake of the Delhi High court pullin
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The Indian Organization for Rare Diseases (IORD) - a not-for-profit umbrella organisation - hosted a webinar on 'Rare Diseases: Prevention' with top global speakers on February 2, 2021.The topic assum
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In a reversal of turns, Orphan Drugs manufacturers in India may likely get some much needed relief from the proposed Rs 15,000 crore production linked incentive (PLI) scheme, according to latest news
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Source: Vaarthahttps://www.vaartha.com/telangana/ts-minister-etala-rajender-attends-world-rare-disease-day-event/
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Hyderabad: While there are 7,000 recorded rare diseases, it is an uphill task to identify a patient with a rare disease. As per the Indian Organization of Rare Diseases (IORD), it takes an average of
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Hyderabad: The draft of the National Policy for Rare Diseases introduced by the Union government on January 13, this year, was much debated in medical circles due to the suggestion of using crowdfundi
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Hyderabad: As much as 90 per cent of patients affected with rare diseases are from middle class, said Eatala Rajender, the Health Minister of Telangana, at the one-day conference on rare diseases here
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Telangana State Health Minister Eatela Rajender Attends World Rare Disease Day 2020 in HyderabadSource: Eenaduhttps://www.eenadu.net/latestnews/Etela-Speech-at-public-gardens-hyderabad/1600/120028427
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You are not alone as we all are one!Doctors, Survivors, Expert Speakers, Healthcare Staff, Patients' Organizations, Rare Disease Patients, Researchers, Policy Makers, Rare Disease Volunteers, Parents
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World Rare Disease Day was observed on Friday, here at HyderabadMillions of people around the world observe Rare Disease Day on the last day of February."Some rare diseases, such as cystic fibrosis, t
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