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WHO Grants ‘Official Relations’ Status to Rare Diseases International. It Will Help Enhance Collaboration With WHO to Enhance Healthcare Access for Rare Disease Community

Rare Diseases International Gains WHO Recognition, Granted “Official Relations” Status

Indian Organization for Rare Diseases (IORD) is a full member of Rare Disease International (RDI)Geneva: In a notable achievement for the global rare disease fraternity, Rare Diseases International (R
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While India’s pharmaceutical industry is predicted to reach $100 billion by 2025, access to rare disease drugs is still a major problem in India, where local and imported orphan medicine prices fluctuate significantly with huge cost differences.

Made in India, Missing in India: The Orphan Drug Access Challenge

By IORD | 0 comment

By 2025, Indian pharmaceutical industry in the nation is predicted to reach $100 billion. Boston, USA: Even though India produces all 450 of the world's orphan medications (APIs), the majority of thes
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Rare disease centers of excellence utilized only 48.7% of the allotted funds in the last three years

Rare Disease Centers of Excellence Grapple with Funds Underutilization

By IORD | 0 comment

Delhi: Patients' advocacy groups have called for the health ministry to implement a mechanism to streamline the utilisation of rare disease funds and ensure as many lives as possible are saved after i
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Introductory speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3.

World Rare Disease Day-2024: The Journey from Awareness to Action

By IORD | 0 comment

The following is a translated excerpt from the speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3
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quality healthcare and assistance should be accessible to all individuals, irrespective of their health status: Prof Ramaiah Muthyala

Patients with rare diseases deserve quality healthcare and support: Prof. Ramaiah

By IORD | 0 comment

The following is an excerpt from a news story on IORD's World Rare Disease Day-2024 event published in Telangana Today newspaper.Khammam: Everyone, regardless of their health condition deserves access
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IORD hosts conference to mark world rare disease day-2024 at Khammam

World Rare Disease Day-24: IORD Hosts Rare Disease Awareness Conference in Khammam

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Rare Disease Epidemic: 90 million Indians among 300 million globally affected with no cure in sight!Non-profit Indian Organization for Rare Diseases (IORD) Hosts Conference on Rare Disease Awareness w
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Ramaiah Muthyala, President & CEO, Indian Organization for Rare Diseases delivers a talk at the National Homeopathic Scientific Seminar-24 in Hyderabad.

Homeopathy Shows Promise in Enhancing Treatment for Rare Disorders: Prof Ramaiah Muthyala

By IORD | 0 comment

The following is an excerpt from an address on Alternate Therapies for Rare Diseases delivered by Prof Ramaiah Muthyala, President & CEO, Indian Organization for Rare Diseases at the National Home
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Registration Open for 12th European Conference on Rare Diseases & Orphan Products

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Registrations are now open for the 12th European Conference on Rare Diseases & Orphan Products (ECRD), scheduled to take place on May 15-16, 2024, at The Square venue in Brussels.Said to be one th
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AIIMS Bhopal Named 12th Centre of Excellence for Rare Disease Treatment in India – Advancing National Rare Disease Policy

Bhopal AIIMS becomes 12th Centre of Excellence for Rare Disease Treatment

By IORD | 0 comment

The Union Health Ministry has designated Bhopal AIIMS in Madhya Pradesh as a Centre of Excellence (CoE) for treating rare diseases, making it the 12th such hospital in the country under the Rare Disea
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Grid 3 Columns

Rare Diseases International Gains WHO Recognition, Granted “Official Relations” Status

Made in India, Missing in India: The Orphan Drug Access Challenge

Rare Disease Centers of Excellence Grapple with Funds Underutilization

World Rare Disease Day-2024: The Journey from Awareness to Action

Patients with rare diseases deserve quality healthcare and support: Prof. Ramaiah

World Rare Disease Day-24: IORD Hosts Rare Disease Awareness Conference in Khammam

Homeopathy Shows Promise in Enhancing Treatment for Rare Disorders: Prof Ramaiah Muthyala

Registration Open for 12th European Conference on Rare Diseases & Orphan Products

Bhopal AIIMS becomes 12th Centre of Excellence for Rare Disease Treatment

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