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US FDA Approves World's Costliest Gene Therapy Drug for Hemophilia B

US FDA approved Hemgenix to cost Rs 28.52 Crore!

The United States Federal Drug Administration (FDA) has approved a new gene therapy treatment for a rare blood clotting disease called Hemophilia B. The drug Hemgenix costs US$ 3.5mn (Rs 28.52 Crore).
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IORD launches first ever rare disease counting project in Telangana

IORD Initiates First-of-its-Kind Rare Disease Counting in Telangana

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Khammam: In a unique initiative to identify and count rare disease populations as part of a pilot study in Telangana, the Indian Organization for Rare Diseases (IORD) has started sensitization and int
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IORD Holds Rare Disease Awareness Workshop for Health Workers

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Telangana: In the run-up to the implementation of the ground-breaking proposal to count rare disease patients within Telangana state, the Indian Organization for Rare Diseases (IORD) organised an awar
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Mistletoe: Introduction and Basis for use in Cancers

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(This is an abridged version of the presentation delivered by Dr P. Harihara Murthy, MBBS, MS, DLO, Sr. Consultant E.N. T., Head & Neck Surgeon & Anthroposophic Physician, Swasthya Niketan, Ko
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Rare Diseases Policy Perspectives

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(This is an abridged version of the presentation delivered by Dr KameshwarRao, Executive Director, National Health Authority at the ‘Dr N Srinivasa RaoMemorial Symposium – Rare Diseases & Alternat
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Clinical assessment of European Mistletoe Extracts (Viscum Album) along with Homeopathy in III and IV stage cancers

Role of Mistletoe with Homeopathy in III & IV Stage Cancers: By Dr Ravi Doctor

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(This is an abridged version of the presentation titled "Clinical Assessment of European Mistletoe Extracts (Viscum Album) Along with Homeopathy in III and IV Stage Cancers". It was delivered by Dr Ra
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RARE DISEASES & ALTERNATE MEDICINE: Dr I. Rajyalakshmi

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(This is an abridged version of the presentation delivered by Dr I. Rajyalakshmi Homeopathy Practitioner, Hyderabad at the ‘Dr N Srinivasa Rao Memorial Symposium – Rare Diseases & Alternative Trea
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Project Y and the Rare Care Centre at Perth, Australia, Children’s Hospital have partnered with the Indian Organisation for Rare Diseases (IORD) to improve rare disease visibility and recognition on a global scale

IORD Partnership: Counting Rare Disease Patients in Telangana State, India

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Project Y and the Rare Care Centre at Perth, Australia, Children’s Hospital have partnered with the Indian Organisation for Rare Diseases (IORD) to improve rare disease visibility and recognition on a
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Conventional And Unconventional Medicines in Treating Haemophilia: Dr V. Chandrasekhar

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HAEMOPHILIA: An Inherited Condition(This is an abridged version of the presentation delivered by Dr V. Chandrasekhar, MD, FICP, Professor in General Medicine, Kakatiya Medical College & Superinten
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US FDA approved Hemgenix to cost Rs 28.52 Crore!

IORD Initiates First-of-its-Kind Rare Disease Counting in Telangana

IORD Holds Rare Disease Awareness Workshop for Health Workers

Mistletoe: Introduction and Basis for use in Cancers

Rare Diseases Policy Perspectives

Role of Mistletoe with Homeopathy in III & IV Stage Cancers: By Dr Ravi Doctor

RARE DISEASES & ALTERNATE MEDICINE: Dr I. Rajyalakshmi

IORD Partnership: Counting Rare Disease Patients in Telangana State, India

Conventional And Unconventional Medicines in Treating Haemophilia: Dr V. Chandrasekhar

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