World Rare Disease Day-2024
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- World Rare Disease Day-2024
- World Rare Disease Day-2026
- World Rare Disease Day 2022
- IORD Webinar: Rare Disease Prevention – 2021
- IORD Webinar 2020: Need for Essential Medicines For Rare Diseases
- World Rare Disease Day 2020 Video Gallery
- World Rare Disease Day 2019 Video Gallery
- World Rare Disease Day 2018 Video Gallery
World Rare Disease Day 2024
Raising Awareness and Advocating Better Care
The Indian Organisation for Rare Diseases (IORD) organised a conference at IMA Hall, Khammam, on March 3, 2024, bringing together dignitaries, medical experts, patients, families, NGOs and other stakeholders. The event focused on raising awareness about rare diseases and advocating stronger public policies, improved diagnosis, accessible treatment and social support. Watch the video presentations below featuring key addresses, discussions and cultural performances from the conference.
Inaugural Ceremony of IORD Khammam Conference | World Rare Disease Day 2024
Led by Prof. Ramaiah Muthyala, the Indian Organisation for Rare Diseases (IORD) inaugurated its World Rare Disease Day 2024 conference in Khammam, bringing together dignitaries and hundreds of rare disease stakeholders. The event featured a ceremonial lamp lighting and a classical dance performance, highlighting the need for awareness, stronger public policies, improved diagnosis, treatment and social services.
Prof. Ramaiah Muthyala’s Introductory Address: From Awareness to Action | World Rare Disease Day 2024
Prof. Ramaiah Muthyala, CEO and President of the Indian Organisation for Rare Diseases (IORD), highlighted the challenges faced by rare disease patients, stressing the need for greater awareness, early diagnosis and policy reforms. He called for collective action, stronger advocacy and improved healthcare support to transform rare disease awareness into meaningful change.
Shri Vijay Mohan Suri’s Address on Rare Diseases | World Rare Disease Day 2024
Shri Vijay Mohan Suri, Senior Executive at Swarna Bharat Trust, addressed participants at the World Rare Disease Day 2024 conference organised by the Indian Organisation for Rare Diseases (IORD) in Khammam. The conference brought together medical experts, rare disease patients and families, NGOs and other stakeholders to promote awareness, better diagnosis, treatment and policy support.
Dr. Samineni Raghavaulu’s Address on Rare Diseases | World Rare Disease Day 2024
Dr. Samineni Raghavaulu addressed participants on rare diseases at the World Rare Disease Day 2024 conference organised by the Indian Organisation for Rare Diseases (IORD) at IMA Hall, Khammam. The conference brought together medical experts, patients, families and other stakeholders to raise awareness and advocate improved diagnosis, treatment, public policy and social support.
Theressa Centre Children Showcase Their Talents | World Rare Disease Day 2024
Children from Theressa Mentally Challenged Rehabilitation Center, Khammam, presented a cultural programme at the World Rare Disease Day 2024 conference organised by the Indian Organisation for Rare Diseases (IORD). Established in 1995 by Mrs. Vanaja Kumari Paruchuri, the centre supports over 100 children, including those affected by rare diseases, highlighting the importance of care, inclusion and social support.
Theressa Rehabilitation Centre Children’s Cultural Performance – Part 2 | World Rare Disease Day 2024
Children from Theressa Mentally Challenged Rehabilitation Center, Khammam, continued their cultural performance at the World Rare Disease Day 2024 conference organised by the Indian Organisation for Rare Diseases (IORD). Established in 1995 by Mrs. Vanaja Kumari Paruchuri, the centre supports over 100 children, including those affected by rare diseases.