World Rare Disease Day-2025
- World Rare Disease Day-2025
- World Rare Disease Day-2026
- World Rare Disease Day 2022
- IORD Webinar: Rare Disease Prevention – 2021
- IORD Webinar 2020: Need for Essential Medicines For Rare Diseases
- World Rare Disease Day 2020 Video Gallery
- World Rare Disease Day 2019 Video Gallery
- World Rare Disease Day 2018 Video Gallery
World Rare Disease Day 2025
Expert Addresses on Rare Diseases and Policy Change
Explore key addresses from leading healthcare professionals, policymakers, medical experts, and rare disease advocates at World Rare Disease Day 2025, organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh. The conference highlighted the urgent need for greater awareness, affordable treatments, stronger healthcare infrastructure, and policy reforms to improve the lives of people living with rare diseases.
Dr. Vinod K. Paul on Affordable Rare Disease Treatments | World Rare Disease Day 2025
Watch Dr. Vinod K. Paul, Member of NITI Aayog, address World Rare Disease Day 2025, organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh. He highlights India’s efforts to make rare disease treatments more affordable and accessible, including domestically developed medicines, improved drug distribution, and advances in gene and cell therapy to bring hope to patients and families.
Sri M.T. Krishna Babu on Strengthening Rare Disease Care in Andhra Pradesh | World Rare Disease Day 2025
Sri M.T. Krishna Babu, IAS, Special Chief Secretary for Health, Medical & Family Welfare, Government of Andhra Pradesh, emphasized the need for stronger rare disease policies, dedicated funding, and improved treatment infrastructure at the World Rare Disease Day 2025 conference in Vijayawada. Watch his address.
Prof. Ramaiah Muthyala Calls for Stronger Rare Disease Policies in Andhra Pradesh | World Rare Disease Day 2025
Prof. Ramaiah Muthyala, President and CEO of the Indian Organisation for Rare Diseases (IORD), urged the Andhra Pradesh government to strengthen rare disease care through dedicated funding, district-level referral centres, affordable orphan drugs, and a state Centre of Excellence to improve diagnosis, treatment, and patient support.
Dr. G. Samaram on Rare Disease Awareness | World Rare Disease Day 2025
Listen to Dr. G. Samaram, former National President of the Indian Medical Association (IMA), address the World Rare Disease Day 2025 conference organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh.
Shri Y.D. Ramarao on Rare Disease Awareness | World Rare Disease Day 2025
Listen to Shri Y.D. Ramarao, Chairman of the Indian Red Cross Society, Andhra Pradesh, address the World Rare Disease Day 2025 conference organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh.
Dr. K. Pattabhi Ramaiah’s Address | World Rare Disease Day 2025
Listen to Dr. K. Pattabhi Ramaiah address the World Rare Disease Day 2025 conference organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh, highlighting the importance of rare disease awareness and support.
Ms. S. Sobha Rani on Rare Disease Advocacy | World Rare Disease Day 2025
Listen to Ms. S. Sobha Rani, Founder and Executive Director of ARDO, address the World Rare Disease Day 2025 conference organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh.
Ch. Murali on Rare Disease Advocacy | World Rare Disease Day 2025
Listen to Ch. Murali, Co-founder of the Bharat MD Foundation, address the World Rare Disease Day 2025 conference organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh.
World Rare Disease Day 2025: Valedictory Address by Sri R K Agrawal
Watch Sri R K Agrawal, Managing Director of Nakoda Chemicals, deliver the valedictory address at the World Rare Disease Day 2025 conference, organized by the Indian Organisation for Rare Diseases (IORD) in Vijayawada, Andhra Pradesh. His address marks the conclusion of the conference dedicated to raising awareness and strengthening support for people living with rare diseases.