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IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
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World Rare Disease Day 2018 Video Gallery

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  • IORD Webinar 2020: Need for Essential Medicines For Rare Diseases
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Home Video Gallery World Rare Disease Day 2018 Video Gallery

World Rare Disease Day 2018 - Presidential Address By Dr Ramaiah Muthyala

World Rare Disease Day 2018 - Chief Guest Shri JP Nadda, Union Health Minister, GOI Address

World Rare Disease Day Technical Session 1 - Research Perspective - Moderated by Dr. Vijay Chandru, Managing Director Strand Bioscience, Bangalore

Technical Session - I : Research Perspective - Presentation by Dr. Jayesh Sheth Director, FRIGE's Institute of Human Genetics, Ahmedabad

Technical Session - I : Research Perspective - Presentation by Dr. Srikanth Mane, Professor of Genetics, Yale University, USA

Technical Session - I : Research Perspective - Presentation by Dr. Duraiswami Navanetham, Founder, Rare Diseases foundation, Chennai

Technical Session - I : Research Perspective - Message from WHO Deputy Director General, Geneva, Dr Sowmya Swaminathan

Session-II : Industry Perspective : Video Message from Dr. Hugh Dawkins President, IRDiRC, Australia

Session-II : Industry Perspective By Dr. Durhane Wong Reiger, President, Canadian Organization for Rare Disorders - CORD

Session-III : Patient Perspective - Mr. Aquibur Rahman's Story, A 'Myotonia Congenita' Patient

Session-III : Patient Perspective - Mr. Chandu & Ms Nirmala's Story, 'Friedreich's Ataxia' Patients

Session-III : Presentation By Dr. M Rajeswari, AIIMS, Delhi

Video Message From Mr. Yann Le Cam, President, European Organization for Rare Disorders - EURORDIS

Video Message by Dr. MS Swaminathan, Founder, MSS Foundation

Presentation By Dr. Neeraja Reddy, Genetic Counselor, Makemygenome India Ltd, Hyderabad

IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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Indian Organization For Rare Diseases
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Email: indiaord@gmail.com

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  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us
IORD – Indian Organization for Rare Diseases