Indian Organization for Rare Diseases (IORD) is an umbrella organization for a reason: It represents interests of all rare disease patients, patient support groups, health policy advocates and health care providers for rare diseases. This is to ensure there can be a collective and coordinated impact on the ground that can benefit the Rare Disease Community in making it a global priority issue.
So, if you are a rare disease patient or represent a such a patient as a guardian or parent or is involved with their welfare as an NGO or Patient’’ Support Group or A Medical Expert, Sesearcher or Counselor engaged with Rare Disease in any way, you are on the right page!
